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Updated: May 12, 2012

3rd Annual Lilac Day
July 31, 2012

Please wear lilac / purple to show your support for Turner Syndrome. Thanks again to Kimberly Ann McInnis for implementing this special day of TS awareness.

TS Conference, Anaheim California
July 20 thru July 22, 2012

Please visit: www.tssus.org for further details.
Hope to see you all there!

New Items Available - TS Butterfly Store

Beauty for Ashes
[paperback book]
* Author: Andrea Leigh Horner

Crystal Butterfly Earrings
Butterfly Cellphone faceplate
Butterfly Ceramic Mugs
Butterfly Picture Frame
Computer Laptop Cover
T-Shirts for infant, toddler, and youth

* Andrea Leigh Horner does an excellent job living with Turner Syndrome (TS) and her spiritual journey. My story is also included. If you have not already done so, please check it out. Thanks for your support in spreading awareness!

News from the Archives...

December 21, 2010
::: TSSUS - TS Awareness Day Recognition


Thank you to all who have participated. Your support and participation was greatly appreciated to crush the ignorance due to the lack of education in regard to Turner Syndrome.

November 15, 2010
::: Proposal submitted to TSSUS


Thank you to all who submitted testimonials. Your voices make all the differences! This proposal is for review of Butterfly Week.

August 11, 2010
::: TS Awareness Day


Wear a Butterfly to Spread TS awareness Day. Invitation to wear anything with a butterfly to show support.


July 30, 2010
::: Website Inspiration


Inspiration for ts.butterflies website is established.


July 16, 2010
::: TS Awareness Page


Administrator for the Turner Syndrome awareness page on FaceBook.


 

Greetings! My name is Kimberly A. Gamson and welcome to my website tsbutterflies.com! I have chosen this name and the butterfly for a symbol, because like a butterfly, Turner Syndrome (TS) girls are miracles of nature and beautiful, delicate, and fragile, just like a butterfly! I am so pleased that it is available for everyone to view! Feel free to look around! I, along with my husband Steve have designed this website for the following reasons:

(a) To spread more awareness regarding Turner syndrome, including a PowerPoint presentation that I have created which explains all about Turner Syndrome.

(b) To allow TS girls, parents and other family members of TS girls, and women to discuss their stories about TS and offer support as well by offering a daily blog with topics regarding TS. I myself am a TS girl, having been diagnosed at birth, so talking with others who know what you are going through is extremely beneficial and therapeutic.

(c) To start an ongoing fundraiser in which I will have items for sale (including a beautiful TS Awareness necklace and matching earrings with much more to come) and a portion of the profits will go to benefit Turner Syndrome.

Why am I doing this?

I am doing this because many girls who are born with Turner syndrome have significant hearing loss and require hearing aids (which can cost $3,000 or more). Currently, these are normally un-covered benefits with most-all insurance companies worldwide. Even then, if they are covered, there is a normally significant co-pay which many can not afford. With the current state of the economy and health care reform, I do not see this being overturned in the near future.

The ultimate goal is to raise enough money from donations to help TS girls/women with assistance to pay for hearing aids or psychological help (as many TS girls have trouble with social skills and need help) needed that the families of TS girls may not be able to afford so that they live a normal, happy life as they deserve.

Furthermore, I am also on FaceBook as many know and have organized a "Wear a Butterfly to Spread TS awareness Day" where one can wear anything with a butterfly to show support. This was implemented August 11th, 2010 to great success and response.

I am confident that over time this will become a reality but I need your help and support to make this dream a reality! Thank you so much for your interest and checking out my website. I hope that you will visit often!


Website designed by Kimberly and Steven Gamson: 2010 - 2012